Tuesday, April 04, 2006

Eliza update 4/4 8pm

Eliza persists in refusing to conform to anyone's
expectations.

First, the negative surprise: she continues to throw
up with most of her feedings, and no one is quite sure
why. Hopefully, it's just reflux, and a change in
feeding schedule and reflux meds will help make her
more comfortable (she cries a lot and sleeps little
these days) and allow her to keep her feedings down.
This remains to be seen.

On the flipside, when the pulmonologists (lung docs)
came to see Eliza today and turned off the flow to her
nasal cannula so they could listen to her breathing,
Eliza surprised everyone by breathing fine on her own!
This happened late this afternoon, so the respiratory
therapist decided that, although this isn't the
gradual weaning plan they had anticipated, they would
give Eliza a chance to prove that she can continue
breathing without support. As of 6:30pm, she was
still breathing a little hard but holding her own,
even through some reflux-induced crying fits.

What an enigma Eliza is! We're grateful to know that
God has a plan for Eliza, since the plans made by
medical folks never seem to quite pan out...!

Love,
us