Dear family and friends,
Sam's stay at the Hotel Duke ICN was pretty disastrous. We did not finish our orientation to the
oxygen tank with the respiration tech until midnight. Daniele left at that point; Eliza started her scream party. Both Eliza and dad managed to catch a couple hours of sleep total, but it was a rough night. Eliza has been catching up on her sleep all day. Daniele has begun what seems to be a better night tonight. We are using a sedative to help her sleep tonight so that she can start getting her days and nights back to some degree of normalcy. The docs report that neurologically challenged babies have a much harder time regaining composure when upset, hence the medication.
We have continued getting everything in place for Eliza's homecoming tomorrow. We share the joy that so many of you have expressed at this prospect. This joy is not unmingled with other feelings. How did it happen that we had to wait more than 2 months to bring our baby home? And, what is the condition of this baby? How long will Eliza be with us? And what will she be while she is with us? We don't know. Doubt hangs over our heads.
How precious, then, to celebrate Passover this year. Doubt may hang over our heads, but the blood of Jesus, our passover lamb, adorns our doorposts. Sorrow and sighing will flee away. They cannot touch us. Where, o death, is your sting? Your boasts ring hollow in this home, with Jesus as its master.
Hosanna! Blessed is He who comes in the name of the Lord!
Love,
Sam, Daniele, Luke, and Eliza (homecoming queen!)
