As it's already 10:30 and this has been a full, exhausting day, this email will be brief.
We met today with the docs in charge of Eliza's care, both currently and once she is discharged, to discuss plans for getting her home. We're aiming for this Sunday, but there's much to accomplish, so that's the best-case scenario. Since Eliza doesn't seem to like to follow plans, no one wants to make any promises just yet.
Before Eliza can come home, a few things must happen:
1) determine the reason for her vomiting (reflux? neurological?) and get it under control,
2) decide if she'll be able to continue long-term without the cannula or if she will need supplemental oxygen/air flow, and/or breathing treatments via nebulizer,
3)get her to sleep with some regularity,
4) get another EEG,
5) educate us on equipment use, etc.
If all goes well, this can all be accomplished this week, but only time (and Eliza) will tell what she's going to need to get home. We'll just keep praying for patience and for God to work out the myriad details.
I have attached a picture taken today of the three of us at the hospital, the first we have of Eliza with nothing taped to her face since the day after she was born! You'll notice Sam isn't looking his sharpest; blame it on having already endured several hours of Eliza's crying. I, on the other hand, was arriving fresh for the battle...
Love,
us
