Dear ones,
Eliza is doing well tonight. She gained 15 grams last night, and she appears to be breathing easier every day. Her feeding tube was pulled back from her intestine to her stomach this afternoon, and the doctors are watching to see if reflux will again be a problem. So far, her nurse reports that she seems to have suffered a few uncomfortable periods, but overall she's doing well and hasn't spit up yet.
Again today, Eliza started having some "suspicious" eye activity: seizures? just strange neurological behavior? We may never know. Otherwise, though, everything else remains the same; she's still requiring some oxygen, and she still was unable to swallow at all for the speech therapist who worked with her today. They're not giving up on either the possibility of weaning her down on the oxygen or of her being able to swallow a little, though. We'll just keep trying. When we get impatient, we have to remind ourselves that just one week ago, it was unclear how many hours Eliza would be able to remain off the ventilator; six days later, there's no question she can breathe on her own, and well, too! Who knows what she'll acheive in another week? God
does, and we continue to trust Him completely.
Love,
Daniele, Sam, Luke, and Eliza
